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If you’re following me on Twitter, you might have noticed my announcement earlier about a friend of mine (who also has hypotonia) named Issac and I declaring January 4th to be Unofficial Hypotonia Awareness Day, and you may have wondered, “Why January 4th? That seems completely random!” And to that, we say yes! But also no. Hear us out.
Once upon a time (yes I’m starting our story like this. Let me love Disney!), I found Issac. Or he found me. I can’t exactly remember (gosh, I am horrible storyteller). Either way, we both followed each other. One fateful day, he tweeted about his desperate longing for a hypotonia awareness day (okay, it wasn’t that dramatic, but I want to make this story a bit more interesting so… I’m gonna keep doing it). I replied that I was all for it but I had no idea what day we should choose. Then, a genius idea struck Issac. He replied that we should pick some random food day. This got me thinking, could spaghetti have its own day? And because human beings are weird (no offense human beings), of course, spaghetti has its own day: January 4th. But why spaghetti, you ask? Because many times, when describing the way hypotonia impacts one’s muscles, the metaphor of cooked spaghetti is used!
So that is the fateful story of how two teenagers set out to make an impact on their world! Share this story, amplify the message! We’re using the hashtag #UnofficialHypotoniaDay, so spread the word! Can’t wait to see how it turns out!
I'm a 15 year old who loves singing, reading, writing, and campaigning for hypotonia awareness.